The Posh Mommy is committed to using fashion as a force for good as the increasingly popular online consignment boutique partners with Epilepsy Foundation of Minnesota during July to raise awareness Epilepsy.
The Epilepsy Foundation of Minnesota (EFMN) envisions a world where people with seizures realize their full potential. The Foundation’s services cover MN and Eastern ND and help educate, connect and empower people with seizures. For information, visit efmn.org
This month fashionistas and bargain hunters have the opportunity to make a difference in the Minneapolis community as well as online while shopping for high-end women's clothing donated by wives, girlfriends and significant others of professional athletes.
“The Epilepsy Foundation of Minnesota is deeply honored to partner with The Posh Mommy, where sports, fashion and philanthropy meet. For 60 years, we’ve been helping people rise above seizures and The Posh Mommy’s ‘fashion for a cause’ proceeds will help educate, connect and empower the 60,000 people in our community with epilepsy.” said EFMN Executive Director Vicki Kopplin.
BETH HUNDLEY, HARLOW’S MOM
Our daughter, Harlow Darling, was born on September 18, 2011. It was the perfect birth where we met our perfectly healthy baby girl we had dreamt of for so long. Just three months later, Harlow would have her first seizure. I was home with her and truly did not understand what I was seeing, but eventually realized it was a seizure and called 911. Twenty-six minutes, several rescue meds, a spinal tap, a second ambulance ride and many other pokes and procedures later the seizure stopped and we were told our baby had epilepsy.
After many more frightening, prolonged seizures with ambulance rides and stays in the PICU, it was confirmed through genetic testing that Harlow had Dravet Syndrome. Dravet is a rare and catastrophic form of intractable epilepsy that causes development, physical, behavioral and speech issues among many others.
Our dream of what parenting would be was completely turned upside down. Our lives are now filled with coping with daily seizures, doctor’s appointments, weekly therapies, medical paperwork and bills and fighting for new treatments to save our daughter’s life. But what it is also filled with is the deepest love and appreciation of life that we may have never known. Our sweet, funny Harlow, now three year’s old, spreads joy and gratitude to anyone who meets her.
STEPHANIE MEGAL, BUSY MOM WITH EPILEPSY
I am a wife, mother of two, Cole 2 and Finley 9 months, and I have epilepsy. I had my first seizure when I was 18, a senior in high school. Through the years I’ve come to realize epilepsy doesn’t affect only me, it impacts my entire family.
My parents would reassure me that epilepsy won’t control my life. My mom used to make me fun calendars to remind me to take my meds and she would sit outside my bathroom door while I took a bath to make sure I was okay. When I felt sorry for myself or inconvenienced by my seizures, my parents would remind me how lucky I am to only have to take a few pills a day to live a normal life.
As I grew up I continued to have seizures. Along with my mom, (my dad, now in heaven), and my brother, my husband Brandon has also been impacted by my epilepsy. Before we were married he knew I had a seizure disorder but never saw me have a seizure. He now has seen two: the last one I was driving into a parking lot to pick up him up and when I didn’t come to a complete stop, he looked in the window to see me having a seizure. The car doors were locked, so immediately he jumped through the sunroof to take control of the wheel. He didn’t care what it took; he was going to keep me safe.
Two years ago, 16 years after being diagnosed with epilepsy, we welcomed our first child and 17 months later our second child. Being a parent living with epilepsy hasn’t slowed me down. My extremely supportive husband is very conscious about me getting enough rest. As a mom I feel it’s very important for me to take care of myself, because my decisions impact our sweet little children too. I tell myself, put your oxygen mask on first, before helping others.